Here it is Tuesday the 14th of May and I am still fighting to recuperate from Relay. Even though I did nap for a short time there around 2am or so, most of the time I was awake and enjoying the event. People I know are still asking me how it went. I give them my best, "you should have been there " smile and then proceed to give them the highlights.
Did I mention that I took a test drive during the Ford Test drive event? I was very happy to help out in raising money for Relay, but I made a poor choice in what to ride in. Having driven an SUV for years now, I should have chosen an SUV because the car that I rode in was cramped and crowded. It was a nice vehicle don't get me wrong, it just had no room. But I got a free shirt out of the deal so it wasn't all bad.
Have I mentioned how walking that survivor walk makes me feel? Okay yeah, it is odd walking past people who are clapping....but then, I and everyone walking deserve that applause, we beat cancer. We are walking, talking, dancing, prancing, singing, shouting, proof that it can be done. We all started out under somewhat similar circumstances in that we were diagnosed with cancer. Then our battles become personal as we fought in our own way. Some kept it quiet, preferring that as few people as possible knew. Some shouted it to the world- fight with me- help me beat this. Some struggled as others grew stronger. In the end we found ourselves wearing purple survivor shirts, walking around a track lined by people all applauding us.
The one thing that I was grateful for was the help of family, friends and teammates during the night. My niece needed volunteer hours for school so I happily agreed to help her out there. She took care of the site a couple of times during the night. Her mother watched it a couple of times so I could walk a lap or two. One team mate and fellow survivor who was there was not able to spend too much time with me as she has a site of her own....right beside her race car. Yeah Brenda..still working on putting the person I work with in a car that does so much over 100 mph. It was cool however getting to walk over and check out the car and learn a little about it.
I started to walk one time only to get stopped part of the way around. I stood and chatted for a few minutes only to notice that they were lighting the Lumanaria bags. I said my good byes and hurried back to the camp site to find my lighters. Once again I was searching for something that I knew I had..just had no clue as to where I had it. Which was one of the most frustrating things of the entire event- the amount of time I spent searching for stuff that I had but had no idea where. When I finally located them I handed one to my niece and one to her boyfriend and asked them to go and help light the candles.
Walking that Lumanaria Lap is humbling, heartbreaking, and inspirational all at the same time. To see the names of those that we've lost beside the names of those who have won brings a chill and a tear.
At one point, late in the evening, another team mate who was also helping out with the banking duty sent her son over to see if I wanted to stroll around for a while. I gladly accepted the offer. As I made my way around the track, listening to the music and wondering what the neighbors were thinking I was struck once again by all of the emotions of the event and the reasons for it. This event had drawn a large gathering of people. All brought together by various reasons for one cause. To fund an end for cancer. By the time I got around to where my site was I found it over run by teenage young men. I didn't mind, they were all just sitting around chatting calmly. When they appeared in no hurry to go anywhere I kept walking. It was the most walking I was able to do and I loved every minute of it.
When the guys finally had been still as long as they could they began to wander off a couple at a time. I was glad that I was close when they did but as late as it was there wasn't much worry of anything getting gone as the crowds had thinned. Now it was the die hards and committed that were there. I knew that I would be there until the sun come up, I just wished that the others were as committed, even as I understood that sometimes you just can't stay.
I helped when I saw that they were gathering the Lumanaria bags. It was right about the time of my short nap, I'm guessing that someone made a noise as they went by blowing out the candles that woke me. When I saw what was going on I unwrapped myself from the blanket and stood. Walking over I helped dump the candles from the bags and trash the bags. When we had gotten the rest of the way around the track they decided to take a break before gathering up the wooden blocks that held the candles. Since I was rested I went ahead and began to gather the blocks and pile them up for easier gathering and boxing.
By the time I had made my way half way or better around the track you could see the sky beginning to lighten. Our co-chair called us together for a final recognition and prayer. Following that was the last lap of the event. It was sad in a way. It was over. All the work all of those months culminated in this..and now it was all over but the taking down and cleaning up.
The final wrap up event is coming up. We'll turn in any money that we have made and hear how everyone did in their fundraising. We'll laugh, we'll applaud and we'll plan for next season. Because until cancer is defeated- we aren't going away.
Tuesday, May 14, 2013
Saturday, May 11, 2013
And a Good-Exhausting-Frustrating-Productive Time Was Had by All- (part 1)
The morning started out early. Not as early as my alarm clock wanted it to, but that was just too bad for the clock. The alarm went off at 5am, I finally quit hitting the snooze and got up just before 6. I got dressed, took the puppy outside for business and then I began to prepare. Collecting up all of the items that I really should have collected the night before but didn't. As soon as the clock hit a decent hour I called down to my brother's place to see if he was going to still allow me to use his large canopy. He should have said no, but instead he told me to come after it. On the way down I passed my mother walking her dog. She had forgotten I had taken the day off and wondered what was going on if I were sick. Once she was reminded of the day she was fine. I was going to ask to borrow my dad's truck but before I could I found out that my brother already had. Time to ask favor number two of my brother.
When I went to collect the canopy I asked if he would have time before he went to work to use dad's truck to haul the tables I had already asked Dad about borrowing and been given permission. When he asked who was going to load them I told him that I would go and shanghai my son and we'd do it right quick. James was not really happy but he did it. Once the tables were loaded I took the truck key back to my brother and the building keys back to my mother. My brother told me that he would bring his canopy in the truck along with the tables.
I returned to the house to continue getting ready when my brother arrived. We rode up to the site and with a little help got the canopy set up and staked down. We set the tables out where they would be needed, then returned home. We barely made it before the road work that had been going on began for the day.
Once I was back home I began to load my SUV-its amazing how much those things can haul. Large plastic storage boxes, plastic chairs, my smaller canopy, cardboard boxes, blankets, food, water, coolers..and the list goes on. I'm glad that passenger vehicles aren't subject to weigh stations or I may have been overloaded. I took it all to the site and began to set everything out. I didn't set it up yet as I had to run an errand. This meant calling on my usual rescuers, mom and dad. They came up to site sit as I quickly left. Unfortunately I chose the route that took me right to the road work. That was a delay I didn't really want but luckily I wasn't delayed too terribly long. I made my trip and back to find that mom had left because the wind had picked up...a lot. Dad had seen me pull in so he had called mom and she was already on her way back. He walked up to meet her as I began to attempt to set up my site fighting the wind as I went. I had hoped for a slight breeze to make the items I had brought to hand from the canopy swing and sway, slightly. This wind was causing the decorative hearts to spin and swing crazily testing my reflexes past the limits of my patience.
As I was attempting to hang the decorations I had my back to the much larger canopy behind me. I had hung tarps from the frame and the wind had them flapping crazily getting seriously on my nerves. Suddenly a different type noise had me turning to see the wind lifting and twisting the canopy behind me. Reaching for it quickly I kept if from flying away but watched as a section of it collapsed in my hands. One of the cross supports had snapped. My heart sank...I was in so much trouble. I borrowed a relatively new canopy only to see it trashed. I was now looking at a 12 x 12 scrap piece. My own canopy swayed and jerked crazily as the wind sought to destroy it as well. Someone passing told me that one other tent had to be rescued from the woods. It didn't help.
I finally managed to get everything in place then I went to make a poster of the items and their cost. The wind had stolen one of my poster boards..it was returned a few moments later by someone a couple of sites away. I made the list but the wind would not allow me to fasten it to the front of the table, so I taped it down to a section of the table surface.
While I had been in the process of setting up one of the committee members had passed by telling me that the Ford Test Drive program was ready. (A local Ford dealership brought 6 cars for test drives. For everyone who took a drive Ford donated $20 to Relay) I had to wait for someone to man the fort. My niece who had asked about getting some volunteer hours in showed up not long after I finished setting up. I showed her everything, showed her the cost list and then me and her mom left to go test drive cars. Well, I didn't drive I rode- the car I was in was nice, but I didn't like the limited room. Guess that SUV has spoiled me. Once Donna got back from her drive we went in to the Survivor Dinner. The food prepared by the Methodist men was delicious, the company was great and the program entertaining. Then it was time.. it was time to head back to the track and get ready for the survivor lap.
I checked on my niece, Angel was doing fine. I made my way over to where the other survivors waited in time to fall into the group already headed around the track. Led by a drum core from East Gaston High School. Listening to applause as you walk past has always been an odd feeling..but I understand it better now. We've fought- some more than once- and won. We've fought- and been forever changed. We're stronger and yes- so much more appreciative of even the small things.
The Cub Scouts carrying a large banner led the lap for the caregivers. They were incredible in how well they did. Once the Caregiver's lap was finished the 5K run commenced. I watched as the runners passed the track and then following the edge of the woods hit the trails that was their route.
The East Gaston Belmont Relay was really under way. We had fought long and hard to get here- and now- let the fun begin.
When I went to collect the canopy I asked if he would have time before he went to work to use dad's truck to haul the tables I had already asked Dad about borrowing and been given permission. When he asked who was going to load them I told him that I would go and shanghai my son and we'd do it right quick. James was not really happy but he did it. Once the tables were loaded I took the truck key back to my brother and the building keys back to my mother. My brother told me that he would bring his canopy in the truck along with the tables.
I returned to the house to continue getting ready when my brother arrived. We rode up to the site and with a little help got the canopy set up and staked down. We set the tables out where they would be needed, then returned home. We barely made it before the road work that had been going on began for the day.
Once I was back home I began to load my SUV-its amazing how much those things can haul. Large plastic storage boxes, plastic chairs, my smaller canopy, cardboard boxes, blankets, food, water, coolers..and the list goes on. I'm glad that passenger vehicles aren't subject to weigh stations or I may have been overloaded. I took it all to the site and began to set everything out. I didn't set it up yet as I had to run an errand. This meant calling on my usual rescuers, mom and dad. They came up to site sit as I quickly left. Unfortunately I chose the route that took me right to the road work. That was a delay I didn't really want but luckily I wasn't delayed too terribly long. I made my trip and back to find that mom had left because the wind had picked up...a lot. Dad had seen me pull in so he had called mom and she was already on her way back. He walked up to meet her as I began to attempt to set up my site fighting the wind as I went. I had hoped for a slight breeze to make the items I had brought to hand from the canopy swing and sway, slightly. This wind was causing the decorative hearts to spin and swing crazily testing my reflexes past the limits of my patience.
As I was attempting to hang the decorations I had my back to the much larger canopy behind me. I had hung tarps from the frame and the wind had them flapping crazily getting seriously on my nerves. Suddenly a different type noise had me turning to see the wind lifting and twisting the canopy behind me. Reaching for it quickly I kept if from flying away but watched as a section of it collapsed in my hands. One of the cross supports had snapped. My heart sank...I was in so much trouble. I borrowed a relatively new canopy only to see it trashed. I was now looking at a 12 x 12 scrap piece. My own canopy swayed and jerked crazily as the wind sought to destroy it as well. Someone passing told me that one other tent had to be rescued from the woods. It didn't help.
I finally managed to get everything in place then I went to make a poster of the items and their cost. The wind had stolen one of my poster boards..it was returned a few moments later by someone a couple of sites away. I made the list but the wind would not allow me to fasten it to the front of the table, so I taped it down to a section of the table surface.
While I had been in the process of setting up one of the committee members had passed by telling me that the Ford Test Drive program was ready. (A local Ford dealership brought 6 cars for test drives. For everyone who took a drive Ford donated $20 to Relay) I had to wait for someone to man the fort. My niece who had asked about getting some volunteer hours in showed up not long after I finished setting up. I showed her everything, showed her the cost list and then me and her mom left to go test drive cars. Well, I didn't drive I rode- the car I was in was nice, but I didn't like the limited room. Guess that SUV has spoiled me. Once Donna got back from her drive we went in to the Survivor Dinner. The food prepared by the Methodist men was delicious, the company was great and the program entertaining. Then it was time.. it was time to head back to the track and get ready for the survivor lap.
I checked on my niece, Angel was doing fine. I made my way over to where the other survivors waited in time to fall into the group already headed around the track. Led by a drum core from East Gaston High School. Listening to applause as you walk past has always been an odd feeling..but I understand it better now. We've fought- some more than once- and won. We've fought- and been forever changed. We're stronger and yes- so much more appreciative of even the small things.
The Cub Scouts carrying a large banner led the lap for the caregivers. They were incredible in how well they did. Once the Caregiver's lap was finished the 5K run commenced. I watched as the runners passed the track and then following the edge of the woods hit the trails that was their route.
The East Gaston Belmont Relay was really under way. We had fought long and hard to get here- and now- let the fun begin.
Monday, April 29, 2013
Changes because of cancer
Changes.
I had a reputation. I was a well known chocoholic and could put a bag of candy away like very few others could. I was often teased about the bags of candy that I brought in to work to munch on during the day. Usually by day's end, most of that bag was gone. It was the same with coffee. Whether I was at work or home, I had that ever present cup of coffee near at hand.
I will never be a world class chef, or even live up to my own mother's cooking. There for a while I relied heavily on those micro-meals. They were okay as far as mystery meat goes, but I wasn't reading the ingredients. Easy does not necessarily mean healthy. On top of all that, I had become rather sedentary.
All ingredients for disaster.
Being diagnosed with cancer has a way of making one look closely at oneself. Maybe not right away. The first thing you have in mind is getting healthy. You do what ever it is you need to do, you go through the tests, the questions, and the surgeries. Then, there are the treatments. It may be radiation, chemotherapy of both. For me it was radiation. It didn't take very many treatments before my energy levels began to fall. I found out that my beloved coffee and the processed sugars in the mounds of junk food that I ate made it worse. Sugar is said to give one an energy rush, but there was also the crash. I never got the rush, I only got the crash. Coffee began to taste metallic. I sat the coffee cup down and turned away from chocolate. To satisfy that sweet tooth that haunted me I began to eat fruit. Lots of fruit. And it worked.
After the radiation treatments ended it took a while before my energy level began to return. Ever so slowly I went from feeling like the walking dead to returning to life. As my strength returned I began to study. I was determined to learn what I could to prevent the cancer from returning. I learned that some of the stuff that I was calling conspiracy scare tactics.. weren't. All of the many chemicals that were being pumped into so called food, was a potential carcinogenic. Too much sodium, too much sugar (of any type), too much additives that only added to the danger. I began to shop for the ingredients that went into real food. Raw vegetables and fruit or frozen without sauces. I completely quit buying the micro-meals. I'm still evolving from micro-mom to a more down home cook, but its a slow process for me. I still eat the fruit and not so much candy or junk food. I scour the information pages seeking out which fruits and vegetables are best and which ones are best for what health aspect.
I also got up out of the chair. I began to take longer walks. Trying to get more active. To live life and not just sit on the sidelines and watch it pass me by.
I also became a part of Relay for Life. I learned of the many things that Relay has to offer. Not just the fighter, not just the caregiver, but also those who simply want to know so they too can help in the fight. Thinking of getting involved? Jump on in- find an event, find a team and join up. Can't join up for various reasons? Find a way to help anyway..provide a service to Relay, provide a hand, support through donations. Don't just think about that change of mind, of heart, of attitude- just do it. Cancer never sleeps- cancer doesn't care who you are, what you are, whether you're young, old, rich, poor. Cancer, is an equal opportunity destroyer. It is the American Cancer Society's desire to rid the world of cancer. It is their hope to create more birthdays, more survivors through willing the battle against cancer.
I went from no involvement in Relay to it becoming a full blown lifestyle. Changes, we all make them. Lets all change for the better, for the healthier and for the determination to end cancer.
I had a reputation. I was a well known chocoholic and could put a bag of candy away like very few others could. I was often teased about the bags of candy that I brought in to work to munch on during the day. Usually by day's end, most of that bag was gone. It was the same with coffee. Whether I was at work or home, I had that ever present cup of coffee near at hand.
I will never be a world class chef, or even live up to my own mother's cooking. There for a while I relied heavily on those micro-meals. They were okay as far as mystery meat goes, but I wasn't reading the ingredients. Easy does not necessarily mean healthy. On top of all that, I had become rather sedentary.
All ingredients for disaster.
Being diagnosed with cancer has a way of making one look closely at oneself. Maybe not right away. The first thing you have in mind is getting healthy. You do what ever it is you need to do, you go through the tests, the questions, and the surgeries. Then, there are the treatments. It may be radiation, chemotherapy of both. For me it was radiation. It didn't take very many treatments before my energy levels began to fall. I found out that my beloved coffee and the processed sugars in the mounds of junk food that I ate made it worse. Sugar is said to give one an energy rush, but there was also the crash. I never got the rush, I only got the crash. Coffee began to taste metallic. I sat the coffee cup down and turned away from chocolate. To satisfy that sweet tooth that haunted me I began to eat fruit. Lots of fruit. And it worked.
After the radiation treatments ended it took a while before my energy level began to return. Ever so slowly I went from feeling like the walking dead to returning to life. As my strength returned I began to study. I was determined to learn what I could to prevent the cancer from returning. I learned that some of the stuff that I was calling conspiracy scare tactics.. weren't. All of the many chemicals that were being pumped into so called food, was a potential carcinogenic. Too much sodium, too much sugar (of any type), too much additives that only added to the danger. I began to shop for the ingredients that went into real food. Raw vegetables and fruit or frozen without sauces. I completely quit buying the micro-meals. I'm still evolving from micro-mom to a more down home cook, but its a slow process for me. I still eat the fruit and not so much candy or junk food. I scour the information pages seeking out which fruits and vegetables are best and which ones are best for what health aspect.
I also got up out of the chair. I began to take longer walks. Trying to get more active. To live life and not just sit on the sidelines and watch it pass me by.
I also became a part of Relay for Life. I learned of the many things that Relay has to offer. Not just the fighter, not just the caregiver, but also those who simply want to know so they too can help in the fight. Thinking of getting involved? Jump on in- find an event, find a team and join up. Can't join up for various reasons? Find a way to help anyway..provide a service to Relay, provide a hand, support through donations. Don't just think about that change of mind, of heart, of attitude- just do it. Cancer never sleeps- cancer doesn't care who you are, what you are, whether you're young, old, rich, poor. Cancer, is an equal opportunity destroyer. It is the American Cancer Society's desire to rid the world of cancer. It is their hope to create more birthdays, more survivors through willing the battle against cancer.
I went from no involvement in Relay to it becoming a full blown lifestyle. Changes, we all make them. Lets all change for the better, for the healthier and for the determination to end cancer.
Saturday, April 27, 2013
Expressions of cancer
One of the reasons (among many) that I Participate so strongly
in Relay for Life is that look. The look of fear, the look of sadness.
The look, of confusion, the look of loss.
When I was diagnosed I had to task of telling my family. My husband was on a buss headed for a hoped for new job. I had no way of seeing his expression, but I could hear the concern in his voice. Has asked if he should just come back home. No, there was nothing going on at that moment, try for the job. My mother took it well. You could see her pain, her fear and concern but she hid them as best she could, as only a mother ready to fight for her child's health could. When I faced one of my brothers, the expression on his face was a combination of all emotions. The expression of one facing mortality. That expression ...that look will forever haunt me. That look of pain on my brother's face hurt worse that the actual diagnoses and following treatments. When I went in to work and word got around there was the confusion. How do you talk to someone with cancer? What do you say? How do you act? That look in their eyes where they are at such a loss. I watched as they stood quietly, I watched as they walked in a wide arch to avoid conversation.
During my battle I lost an aunt to cancer. Her family, her friends all who knew and loved her mourned her loss.
Since my personal battle I have watched friends fight. I have met so many other survivors and learned of their battles.
I know of a young man who fought valiantly and lost. Leaving a family to grieve and then to work hard toward what ever they could to keep their son alive in action and memory.
I know a young man who is currently fighting cancer for the second time.
Loss to a disease is not just the loss of a person. We lose a treasured friend, we lose a loved family member, we lose possibilities. What could their life have brought to us? What grand adventures, what great creations and enterprises, what great love have we lost?
I participate in Relay because I learn so much. I learn the love of friends, the caring of others and ways to fight. I've learned the foods that are good for you, the activities that help the body and the mind. I have learned the things that can and does help the spirit, the mind and emotions.
I discuss Relay (as if you didn't know that), I do invite others to join in the battle and I do fund raise. But the most important thing, is trying to bring it to mind and keep it in mind that we are all touched by cancer. It is up to us to fight, to work toward a cure and a prevention for cancer. Won't you join us? Won't you help us? It isn't all about money, we need people, we need creative talent, we need hearts determined, we need those who can provide a service or a piece of equipment, advertising, signs, music.. etc.. many of the small things that are important to the over all things. Its Relay, its all night and its every day.. because for now, cancer doesn't sleep.
http://main.acsevents.org/goto/rebeccasrevelsWhen I was diagnosed I had to task of telling my family. My husband was on a buss headed for a hoped for new job. I had no way of seeing his expression, but I could hear the concern in his voice. Has asked if he should just come back home. No, there was nothing going on at that moment, try for the job. My mother took it well. You could see her pain, her fear and concern but she hid them as best she could, as only a mother ready to fight for her child's health could. When I faced one of my brothers, the expression on his face was a combination of all emotions. The expression of one facing mortality. That expression ...that look will forever haunt me. That look of pain on my brother's face hurt worse that the actual diagnoses and following treatments. When I went in to work and word got around there was the confusion. How do you talk to someone with cancer? What do you say? How do you act? That look in their eyes where they are at such a loss. I watched as they stood quietly, I watched as they walked in a wide arch to avoid conversation.
During my battle I lost an aunt to cancer. Her family, her friends all who knew and loved her mourned her loss.
Since my personal battle I have watched friends fight. I have met so many other survivors and learned of their battles.
I know of a young man who fought valiantly and lost. Leaving a family to grieve and then to work hard toward what ever they could to keep their son alive in action and memory.
I know a young man who is currently fighting cancer for the second time.
Loss to a disease is not just the loss of a person. We lose a treasured friend, we lose a loved family member, we lose possibilities. What could their life have brought to us? What grand adventures, what great creations and enterprises, what great love have we lost?
I participate in Relay because I learn so much. I learn the love of friends, the caring of others and ways to fight. I've learned the foods that are good for you, the activities that help the body and the mind. I have learned the things that can and does help the spirit, the mind and emotions.
I discuss Relay (as if you didn't know that), I do invite others to join in the battle and I do fund raise. But the most important thing, is trying to bring it to mind and keep it in mind that we are all touched by cancer. It is up to us to fight, to work toward a cure and a prevention for cancer. Won't you join us? Won't you help us? It isn't all about money, we need people, we need creative talent, we need hearts determined, we need those who can provide a service or a piece of equipment, advertising, signs, music.. etc.. many of the small things that are important to the over all things. Its Relay, its all night and its every day.. because for now, cancer doesn't sleep.
http://main.acsevents.org/goto/HEARTforacure
Thursday, April 25, 2013
Differences in Handling what we are handed
Time does not dull everything. It does not take away all
memories. There are those that we wish that it would..and some it does.
Or at least eases the pain in such a way that you can stand back at a
distance and see the events as if you were watching a movie or reading a
book about someone else and their life. I believe that is what is
helping me. As time has passed I have reached a point where I can stand
and review what went on during my cancer battle with a more objective
eye. It has also given me a much better understanding of the battle of
others. Of course I can not fully understand their fight and feelings as
we are each different and handle our battles in our own ways.
I went through a time of wondering. Can they really be telling me its possible? What is on that image that has them suspecting? But no one in my family has ever had breast cancer to my knowledge--can you have breast cancer if no one else in the family has? (silly question maybe but it did cross my mind.) Yes, no and maybe was a constant mantra running through my head. Could I really? If I do what will happen? If I don't..and I probably don't but if I don't will I feel silly for all this internal babbling? But, if I do...on and on and on while I waited for everything to fall into place as far as getting an appointment for the doctor to see me and begin the actual finding out process. What was showing up on that mammogram.
There were the nerves on edge. I am terrible with directions as I have no sense of direction. Send me somewhere for the first time and there is a great likelihood that I will end up on the opposite side of town if not the county. I was driving back from Tennessee one time and only had one turn to take. One. and I missed it. I was making good time too until I came to this town that hadn't been there the day before. I know that buildings can go up quicker now, but not that quick. So I was worried about finding the doctor's office being that there are several roads that lead off of the main road by the hospital. I didn't disappoint myself either as I chose the wrong road the first time.
There was that moment of nerves when she came at me with that enormous needle to do the first biopsy. Well deserved because that hurt. And then there was the waiting, the results and the realization..
How does one act when they know something? There hasn't been any verification, no precise response but you know that you know. The verification and official word, that's just confirmation but you already knew. When the needle biopsy came back with the cells present that often meant there was cancer.. not a definite but good possibility and that I needed a surgical biopsy but I knew. Let them cut, but I already knew.
There were all of those moments of annoyance. All of the ten and a half million questions. All of the tests and people and appointments. So many moments when I just wanted to say forget it all. But I endured.
There was the confirmation and then more tests, more questions and more appointments right up until the day of the surgery. I wasn't really afraid, I was relieved that we were getting this taken care of and it would soon be in the treatment stages. Treatments..thankfully I didn't need chemotherapy but I did have to undergo radiation treatments. The one time that I felt fear was while sitting in that little waiting area for my turn. Sitting there all alone, I was trying to read a magazine but I gave up and sat and trembled and was on the verge of tears when they finally called my name. The treatments were not really bad. I burned a little but not so much that it hurt, even though I did get lectured by the doctor that I needed to put more lotion on the burns.
I worked the entire time. I missed one day for the surgical biopsy and I missed two days for the actual surgery. During my radiation treatments I went in fifteen minutes early so I could leave fifteen minutes early to go for treatments. There were days that I wondered how on earth was I going to put one foot in front of the other. My feet would get heavier and heavier during the day until it was all I could do to take a step. I slept at night, I just had no energy.
My diet changed. Sweets, junk food of any type and caffeine made the exhaustion worse. I took to eating at every break and eating healthy. Fruit and lots of it became the norm that is still true to this day. I decided that in the hopes of keeping the cancer from returning I would need to make some changes, the diet being one of them. Then it was none, now its less coffee, only one soda a week (and I don't drink all of it), lots and lots of fruit and veggies and I pay close attention to what I purchase food wise. I try to get a regular amount of sleep but that's not always possible.
But that's me, that is how I handled so much of the fight. My inner strengths and weakness. My fears and determination. We all have our ways of handling things. Our strategy is different being we are each so different. Our stories are different. My hope is that the results are the same-- survivor, long term.
My hope, one day there will be no such thing as cancer. And that is why I do what I do. So that the fighter, doesn't wonder or fear that they are alone or forgotten.
Join me? Help me, help the ACS create more birthdays through research, through information, through programs, through volunteers and education. Through someone being there when they are needed. Join me? Join the fight and be on the winning team.
Team link: http://main.acsevents.org/goto/HEARTforacure
my page: http://main.acsevents.org/goto/rebeccasrevels
I went through a time of wondering. Can they really be telling me its possible? What is on that image that has them suspecting? But no one in my family has ever had breast cancer to my knowledge--can you have breast cancer if no one else in the family has? (silly question maybe but it did cross my mind.) Yes, no and maybe was a constant mantra running through my head. Could I really? If I do what will happen? If I don't..and I probably don't but if I don't will I feel silly for all this internal babbling? But, if I do...on and on and on while I waited for everything to fall into place as far as getting an appointment for the doctor to see me and begin the actual finding out process. What was showing up on that mammogram.
There were the nerves on edge. I am terrible with directions as I have no sense of direction. Send me somewhere for the first time and there is a great likelihood that I will end up on the opposite side of town if not the county. I was driving back from Tennessee one time and only had one turn to take. One. and I missed it. I was making good time too until I came to this town that hadn't been there the day before. I know that buildings can go up quicker now, but not that quick. So I was worried about finding the doctor's office being that there are several roads that lead off of the main road by the hospital. I didn't disappoint myself either as I chose the wrong road the first time.
There was that moment of nerves when she came at me with that enormous needle to do the first biopsy. Well deserved because that hurt. And then there was the waiting, the results and the realization..
How does one act when they know something? There hasn't been any verification, no precise response but you know that you know. The verification and official word, that's just confirmation but you already knew. When the needle biopsy came back with the cells present that often meant there was cancer.. not a definite but good possibility and that I needed a surgical biopsy but I knew. Let them cut, but I already knew.
There were all of those moments of annoyance. All of the ten and a half million questions. All of the tests and people and appointments. So many moments when I just wanted to say forget it all. But I endured.
There was the confirmation and then more tests, more questions and more appointments right up until the day of the surgery. I wasn't really afraid, I was relieved that we were getting this taken care of and it would soon be in the treatment stages. Treatments..thankfully I didn't need chemotherapy but I did have to undergo radiation treatments. The one time that I felt fear was while sitting in that little waiting area for my turn. Sitting there all alone, I was trying to read a magazine but I gave up and sat and trembled and was on the verge of tears when they finally called my name. The treatments were not really bad. I burned a little but not so much that it hurt, even though I did get lectured by the doctor that I needed to put more lotion on the burns.
I worked the entire time. I missed one day for the surgical biopsy and I missed two days for the actual surgery. During my radiation treatments I went in fifteen minutes early so I could leave fifteen minutes early to go for treatments. There were days that I wondered how on earth was I going to put one foot in front of the other. My feet would get heavier and heavier during the day until it was all I could do to take a step. I slept at night, I just had no energy.
My diet changed. Sweets, junk food of any type and caffeine made the exhaustion worse. I took to eating at every break and eating healthy. Fruit and lots of it became the norm that is still true to this day. I decided that in the hopes of keeping the cancer from returning I would need to make some changes, the diet being one of them. Then it was none, now its less coffee, only one soda a week (and I don't drink all of it), lots and lots of fruit and veggies and I pay close attention to what I purchase food wise. I try to get a regular amount of sleep but that's not always possible.
But that's me, that is how I handled so much of the fight. My inner strengths and weakness. My fears and determination. We all have our ways of handling things. Our strategy is different being we are each so different. Our stories are different. My hope is that the results are the same-- survivor, long term.
My hope, one day there will be no such thing as cancer. And that is why I do what I do. So that the fighter, doesn't wonder or fear that they are alone or forgotten.
Join me? Help me, help the ACS create more birthdays through research, through information, through programs, through volunteers and education. Through someone being there when they are needed. Join me? Join the fight and be on the winning team.
Team link: http://main.acsevents.org/goto/HEARTforacure
my page: http://main.acsevents.org/goto/rebeccasrevels
Wednesday, April 24, 2013
Relay for Life..not just a cancer thing..
Have you ever heard of Relay for Life? Have you ever noticed those
folks that wear the Survivor or "I am Hope" t-shirts? Have you ever been
curious of what it is all about? Have you ever noticed and thought-
that doesn't have anything to do with me I don't have cancer. But
actually....it does. We have all in some way, shape or form been touched
by cancer. Whether it is our self, a family member, a friend,
co-worker, or a friend of a friend of a friend. It does touch us in some
way. A family member is in the hospital facing surgery. A co-worker is
out due to treatments. A child is far away from home in a hospital
fighting for their life. A person stands above a grave with tears
streaming missing that loved one.
Relay for Life is the main fundraising arm of the American Cancer
Society but it is much more than that. Here are some of the things that I
as a member of the East Gaston Relay for Life have learned personally
about Relay for Life, not in order of their importance.
Relay is yes, a fundraiser- while much of the money raised goes to
help fund research for a cure there are other things that money helps.
There are programs set up such as the "Look good-feel good" where there
are people who help cancer fighters -look good- through wigs, scarves,
make-up. There are phone numbers and web sites set up with people
manning them to offer information and assistance. There are rider
programs that get the fighter back and forth to doctor visits and to get
their medicines. This to name just a few examples.
Relay is in itself educational. Often times the monthly meetings
will have a guest speaker. The speaker will share information on other
Relay events, the programs offered, how the money is spent, of the
things offered by the American Cancer Society and of the many ways to
battle a terrible disease. To name just a few.
Relay offers the fighter/survivor a chance to meet some of the
people who are fighting for them. It offers them the chance to meet
other survivors and know that when it may feel as if they are alone- in
truth they are not.
Relay through the year has teams that put on fund-raising events
that allow fighter, caregiver, and others a chance to come together, to
have some fun and to support Relay but participating in what-ever the
event at that time may be. Whether it is a barbecue, hot dog or candy
sale. Whether it is a car show, a motorcycle run or golf game.
Relay offers the community at large a chance to come together in an
event that goes through the night. An event filled with fun and
laughter, where more than a few tears are shared. It offers music, song
and dance. It offers demonstrations. It offers challenges. It offers
those attending a chance to donate, to purchase items in various ways
with the money going to Relay, to purchase raffle tickets on some
interesting items where all are winners. Relay, the winning ticket
purchaser and those who were able to donate even that one dollar.
Relay for Life is not just a fundraiser. The people that join
together to form teams, to form an event become much more than that.
They become family. They know the survivors, they know the caregivers. A
bond is formed and strengthened by the caring hearts that attend and
work toward a common goal. They work together, they share, they fight
for the life of those affected. They laugh, they cry and they pray
together. They work together to raise money for the ACS in the hope of
finding that cure, of finding the ways to prevent, of creating more
birthdays and celebrating lives and hope.
Relay is not just a cancer thing-- it is a community thing. Because cancer touches us all.
Feelings to deal with
Looking back on it from this perspective I can see it more
intellectually, but the emotions of that time haven't changed. The time
distance makes them more easy to bear but I know that they will forever
be a part of me, for that I am actually thankful.
When the doctor told me that I needed to have a mammogram I was
mentally flippant. The thoughts were basically, "sure, no problem." To
my knowledge no one in my family had ever had breast cancer so no
history, no worries. Ignorance is not bliss.
My only concern at the time was finding the imaging center as I
have absolutely no sense of direction. After all, I am the person who
coming back from a weekend trip one time missed the one and only turn I
had to make and had us many miles out of the way before I realized my
error. I can and often do work myself up into an unnecessary mental
state worrying about things. As it was, I had time though to find the
place and believe me I went out of my way to find it before hand. I
asked directions, I searched on line and I drove out to the location and
around to the side of the building where it was located. Still on the
appointed day I was a nervous wreck until I pulled into that parking
area where I was to go, parked and entered the building.
Now my only concern was for the coming embarrassment, discomfort
and pain. I am a self-conscious person who is very uncomfortable when it
comes to body parts being exposed even to medical personnel. That and
the fact that I had after all heard all of the horror stories connected
with mammograms. Walking down that wide hallway I had a somewhat better
understanding of those walking that last mile. The way was well lit but
my fear made it dark.
Signing in at the window I then moved through the doors and
entered the waiting area. This was a very comfortably decorated room.
Designed to make one feel at home with an understated elegance. I was
still nervous. I tore up a tissue, I read and reread those little
informational cards- not remembering a thing on them and I shifted
repeatedly in my chair. After waiting, called to fill out insurance
information and then waiting a little more I was called back. Shown to a
dressing room and told to strip to the waist and dress in a nice fat,
fluffy robe. That done I sat down to wait and tremble. If trembling were
a weight loss tool I would have lost several pounds sitting in that
room. While I waited all manner of thoughts flowed through my mind.
Thoughts that were to some degree expected and logical and some that
came from way out in left field that were the manifestations of a
frantic mind. To some degree- man,y if not most -of us fear the
unknown. Especially when you know others that love to share all of the
horror stories they know, whether personal or one of those it happened
to..' stories. The mind and one's imagination can create
havoc. Combined, they can take you to places where there is no reason to
go. Only when you have the mental aptitude to keep those fears and
thoughts in check are you prevented from acting out physically. Right
when my fear was reaching its crescendo I heard my name called through
the door. Even though I had known it was coming I was still startled
from my mental ramblings and jumped slightly. Standing, I took a deep
breath and opened the door. It was waiting.
Following the technician down the short hallway I was giving
myself a mental pep-talk. It would be fine, no worries, no pain, no
problems. Self wasn't listening very well. Passing through a door with
warning signs around it I looked at one of the strangest machines that I
had ever seen, and I didn't like it. The technician wasted no time and
as she instructed I followed to the best of my ability. All the while
babbling on, making the same comments that she had probably heard
thousands of times before and some that could come only from someone
like me who has an unusual sense of humor and unique oddness about them.
Even through all of that she was very professional and I soon lost most
of the embarrassment and found that the discomfort was not nearly as
bad as I had feared. It was definitely not something that I would want
to deal with on any schedule other than once a year, but I was not in
the excruciating pain I had built of the fear
for. When she told me afterward that I may get called back due to
nothing to compare to I wasn't worried. I had done the mammogram thing,
it was over, it was good I was about to go back to my so-called normal
life and not worry about this again until next year.
That flippant attitude continued even when I did receive the
message and returned for the images they needed. It was the day after
Thanksgiving, mom and I were going shopping and my thoughts were on all
of the great deals we were missing not on what was taking place. If
anything I was feeling slightly annoyed. Mom was with me as once this
was finished we were going to head out and find out what deals might be
left. Impatience more than anything fueled my emotions as I sat, waited,
followed, undressed and entered the imaging room. I was annoyed right
up until they only took images of one side. I was told to sit and wait
while the image was shown to a doctor. Another set of images later I was
told the same thing. After the third set I was slightly concerned,
especially when I was told they needed an ultrasound. Fear is like a
kudzu plant. It starts out as a tiny sprout and then grows
uncontrollably when allowed. Walking back down the
hallway to wait, listening to the technician actually babbling on about
shopping that first tiny sprout was trying to peek out. I don't like
being afraid. It is not a comfortable emotion. I do not ride those
thrill rides at amusement parks partly because of that. I don't like
heights, I don't like feeling like I'm falling and I don't like not
knowing what others do especially when it comes to me and my health.
Even my mother who was still waiting for me picked up on the babbling
and wondered.
Lead back to another area of the building I followed instructions
and waited yet again in another cold room. When you are beginning to
feel fear, a cold room is one of the last places you want to be. It only
amplifies the trembling. The actual ultra-sound wasn't a problem. I
watched the images on the screen and watched as she returned time and
time again to the same area. She knew what she was looking at, I didn't.
Again the unknown and the fear that comes with it sprouted a bit
higher.
I was told that I would need to see a surgeon as there was
"something" showing up. My attempt at shrugging it off in agreement
didn't quite have the same effect that it had in the beginning. Mom and I
didn't go shopping. The mood to find bargains was no longer there.
Instead in the back of my mind was the question, do I have cancer?
I believe that fear, nerves, worry all have a cancer type affect on
one. It grows, consuming one's thoughts and actions. You try to put it
out of your mind, you try to push it aside only to have it return time
and again. You go on about your business, taking care of your daily life
and all the while its still there hounding you.
I loved my surgeon immediately. She has the best personality and
style of dress. She is her own self with a wonderful attitude. I had
worried about this meeting. I tend to say odd things at odd times and
have people give me 'that look' letting me know they wonder if my
keepers know that I'm running loose. In this doctor I found somewhat of a
kindred spirit. She examined the images and told me that they-the
almighty They- thought something was there. She showed me where the
'something' was and that it didn't have a defined appearance. That was
when mouth opened and I told her it looked like a cat. She glanced at me
and then the image and reluctantly agreed. She told me that she wanted
to do her own ultra-sound. When I asked her if it would really be a cat
scan she said "No..its an ultra-sound." but when the assistant she
called came in she told the assistant that she wanted to do a 'cat-scan'
I loved the expression on the girl's face. It brought
that Kudzu in my mind down a notch. Even when the ultra-sound showed
the same thing that 'they' had found I wasn't really too terribly
concerned. When she told me that she wanted to do a needle biopsy I
shrugged. I thought we would set up an appointment. Nope, she did it
right then.
When we allow emotions to control us they can hurt. Broken hearts,
separation and loneliness, fear of any kind, deceit of a friend..but
that needle going in and the after effects...now that was pain and not
merely an emotional one. The sample would be sent off and we would have
the results in a week. that fear Kudzu plant can grow a lot in a week if
you allow it. I was doing my best not to allow it. When it came back
showing the possibility and that she needed to do a surgical biopsy I
knew.
How many emotions does one actually have? Joy, love, hope, faith,
trust, fear, hate, worry. You could start naming them and with all their
variations never reach the end of the list. That was what I was
feeling. I returned to work a mental mess. The foremost and strongest
emotion was that I did not want to deal with this. I did not want to go
through with this. I was not happy, I was angry, and I was a little
afraid. Kudzu grows quickly.
Back in a far corner of the department I gave in and leaned over a
box waited to be filled and prayed with all of the passion that I could
pray. I did NOT want this. I am unashamedly a Christian. I believe in
the Hope. When I prayed I was answered. Just not in the way I expected.
Chastisement of the Spirit gets your attention, but it let me know I was
not alone. The fear that had been eating at me- left. The creeping
Kudzu plant wilted and fell away.
The surgical biopsy was an inconvenience that I had to deal with to
get to the real ball game. Questions and tests and presurgery stuff out
of the way my husband took me to the outpatient building and we waited.
It was raining that morning and it fit my mood. I had to be here but I
didn't want to be. I was only slightly nervous, mainly because I was
once again dealing with the unknown. I had never had any surgery before
this was new ground for me. Everyone was so very nice though, my fears
and concerns eased. I knew what they would find, but now I was girded
for battle, I was not alone.
When the biopsy showed the cancer I did not fall apart. I did not
panic. I did not cry, moan or curse the fates. I matter -of- factly told
her that she knew what and where it was- go get it. Game on.
The most difficult part in all of this so far was that I was going
to have to tell my family that I had cancer. My husband was on a bus
headed for a potential job. I called him and broke the news over the
phone. I knew he didn't want to wait, he had made me promise to call. He
was concerned, wanted to know if I wanted him to come back but I told
him there was nothing he could do, continue on and see about the job. My
mother took it better--or hid it better-- than I had hoped. My brother
that lives the closest- he took it hard. He refused to look at me at
first. I guess when you are facing our mortality for the first time it
does make one confused and distressed. It took a few minutes but I
finally got him past that. It was going to be okay. I knew though that I
didn't want to deal with anything like the same reactions at work so I
purchased a pink ball cap with the awareness ribbon on the front and
wore that to work the next day. Of course it
was questioned as I do not generally wear a cap but it broke all the
ice and work went on and those who had dealt with this before me rallied
to my side.
There is a lot more preparations that need to be made for surgery
than I had ever realized. How many times can they ask you the same
questions? How many different people need the same information? How many
times must you have the same tests? Why do MRI's have to be so
frightening? Well, at least to me and my not so lovely claustrophobia.
Why are hospital rooms- any and all hospital rooms so freaking cold? I
do really love those heated blankets though. A lot of different people
came in as I was preapring for the surgery. Each with their own purpose.
Each very friendly and very professional. Each managing to calm my
nerves a little bit more. I wasn't so much afraid. I knew what they were
going to do, and it wasn't as if they were doing back or heart surgery,
but that level of concern and fear was determined not to be ignored. I
think that they have the timing of that anesthesia down to an art form.
Both times the minute I entered the operating room
the first and last thing I saw was that bank of lights- then it was
lights out.
Waking up after surgery is an adventure in itself. Disorientation
is not fun. Trying to figure out where you are and why you are there.
Who is that calling your name and why are so many people staring at you
expectantly? Getting dressed and going home is always a relief whether
it was a major or minor reason for your visit. Sleepy and nauseated from
the anesthesia I went straight to bed and pretty much stayed there. I
got up a couple times to talk with people and let them know I was
doing okay but for the most part I lost two days. The day of and the day
after the surgery. Now the real fun would begin.
Once the bandages were removed and I had healed up slightly I was
sent to see an oncologist. Another professional type person that I had
to see and try to figure out their personality and find out where the
lines were drawn as to what part of my sense of humor would be accepted
and what would get me those so familiar looks. He turned out to be a
very nice doctor and gentleman. He, too, had a wonderfully quick, witty
and bright sense of humor. Amazing- but not surprising- how blessings
are given. The first visit was a fact finding one. Afterward I would
get my schedule. It still had not been determined if I would need
chemotherapy. I wasn't afraid too much of the radiation..and I wasn't
afraid really of the chemotherapy. My pride simply did not like the idea
of losing my hair. Even though I complained about it for various
reasons on a regular basis, it was my hair and I didn't want to lose it.
Pride is a silly thing actually.
Turns out my fears were relieved and I didn't have to face that threat
as I did not need chemotherapy- only the radiation.
Fear of the unknown crept up again on that first day. I had no idea
what was about to happen and I did not in any way look forward to it.
The treatments turned out to be not so bad in themselves. It was the
after effects that got me. Each day I grew more tired. Each day the
weariness threatened my ability to function. Every single step was
difficult. They were acts of sheer determination. I had no energy,
thoughts and emotions took too much to feel. I was a machine doing what I
had to and only what I had to just to get by. I had to totally change
my diet. No more chocolate- no junk food period. The processed sugars
only made the exhaustion worse. I allowed myself one cup of coffee a
day- the rest of the time it was water. I was always thirsty, downing
bottle after bottle of water a day. I carried one with me at all times. I
had to learn to allow others to do for me. I- the person who prided
herself on her self efficiency had to have help doing
simple things. People I did not know who were reading the columns that
were running in the paper would see me attempting to lift something and
would rush to my aid. I received multitudes of cards and letters from
people. Strange these feelings.
Cancer can and does give you a feeling of isolation. You know you
are not the only person to have dealt with it. You are not the first and
you won't be the last. But-- this is you. The fear that tries so hard
to consume you. The loneliness in those times when you let down your
guard, the exhaustion that you fight, the sickness from treatments. All
battles you must fight and even when you have people at your side, they
can only do so much. They can lift things for you, they can cook meals,
do housework, drive you places...but they cannot fight the battle. As
your body fights against the invader your mind and heart fight against
the emotions that threaten.
The entire time I was in my particular battle even as my family and
friends were around, they could not be around all of the time. I found a
healing presence waiting for me on the many long walks that I began to
take. Always along the route, and I took the exact same route daily,
there was something special waiting for me. I found flowers that I had
never noticed before, I found an amazing variety of insects. Deer,
raccoon and opossum appeared on various occasions. There was always
something amazing waiting to remind me that I was not taking this
journey alone. There in lay my peace.
All of this was in 2008. Still today I can and do look back on
that. It is a forever part of me. I faced and dealt with the emotional
side of this thing. I was able to write about it then and write about it
now. I have shared and continue to share my experience not for pity or
attention, but to let others know that it is something that can be
faced, can be beaten. Do I ever worry about it returning? I wouldn't be
human if I didn't..but if it does. I know who is on my side.
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